I have been narcoleptic since high school. I was only diagnosed with it 8 years ago (I am ~40), so I actually lived with it for around ~15 years undiagnosed. In that time, I graduated high school, college, and went into a career.

So, with the preliminaries out of the way, and in a effort to contribute to the AMA comm:

AMA

  • Pandantic [they/them]@midwest.socialOPEnglish
    2·
    2 months ago

    I’ve never fallen asleep while doing something truly stimulating. Boring to me tv show or movie while comfy, sleep at 10pm, TV show that has me gripped, binge until 2am. I have a memory from my teens of watching a good movie in the theaters, no issue, but a friend dragged me to see it a second time and I passed out.

    Absolutely, me too. If my brain is stimulated, then I’m at no risk (unless other factors are against me).

    It was crazy to see the EEG showing me hitting REM with 15 minutes. Sometimes I feel like I’m conscious and experience REM.

    Mine was more like 2 minutes. My doctor once called me “extremely narcoleptic”.

    Thanks for chiming in and sharing your experience! I used to have a really great narcolepsy community over on R*ddit, and that is one of the few things I miss about that place.